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January, 2006, the Polus Center hosted a small fact-finding delegation
to Zambia to learn about the relationship between disabilities
and HIV/AIDS through support from the Schiffman Foundation. It
was learned that social stigma, poverty, and other factors make
persons with disabilities more vulnerable to HIV/AIDS and other
overarching issues, but less likely to receive services. As a
result, the Polus Center helped local Zambians to begin their
own organization to begin addressing the problem.
The Polus Center provided a small amount of start-up
funding and technical support to Ubuntu Association of Zambia.
The objective is to begin filling the gap between persons with
disabilities on the ground and the overarching services providing
for health and HIV/AIDS care, education, food, and economic opportunities
in the community.
Beginning small, Ubuntu began working with a couple
of families that they had identified as the most vulnerable within
their group. The Polus Center worked with Ubuntu to formalize
its activities as "case management" and "grassroots
advocacy" to insure that people with disabilities received
the same services that other community members are entitled to
and to advocate and create awareness in the community to become
more inclusive.
Some examples of Ubuntu's work with families are:
Mrs. T is a single mother supporting four children
and grandchildren, two with disabilities, living in a tent on
the outskirts of Lusaka. Mrs. T had no means of support, so Ubuntu
helped her to start a small business selling corn puffs in the
city market. Soon, with lots of help and advice, she was making
enough money to not only insure that the whole family was fed,
but to begin building a home on their small plot of land. Ubuntu
meets with her weekly, following up to make sure the kids get
healthcare when they need it, the business remains viable, and
assisting in any way they can.
C. is a twelve year old girl who had suffered paralysis
as a reaction (stroke) to antiretroviral treatment for HIV. She
lives with her mother and three siblings on the outskirts of Lusaka.
The community school that C. had been attending had expelled her
because the headmaster said they were not equipped to "handle
disabled kids" despite C.'s ability to continue walking despite
partial paralysis and the lack of any neurological damage from
the stroke. In fact, daily C. came to the school grounds to visit
her playmates but was barred by the teachers from entering the
classroom. Being tossed out of school not only meant C. was now
no longer learning and now socially isolated, but it also made
the family ineligible for the World Food Program that is distributed
through the schools. Ubuntu, after making no headway with the
school's administration, went to the highest levels in the community
school (i.e. its NGO funder) to advocate that she be readmitted
and even went beyond to do a workshop and sensitivity training
with all of the teachers and students to better understand disability.
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